English leaflets/brochures CMN and NCM
CMN information leaflet Caring Matters Now (UK)
Information leaflet Nevus Outreach (USA).
Medical information
CMN medical booklet Caring Matters Now (UK).
NCM Brochure Nevus Outreach (USA).
Support guidance for families
Baby Looks Different
Age Group: 0-3 years
Making Friends and Fitting In
Age Group: 7-11 years
Meeting People and Feeling Good
Age Group: 0-3 years
Talking to Other Children
Age Group: 7-11 years
Meeting Others
Age Group: 3-6 years
Handling Adolescence
Age Group: 11-18 years
Sturge Weber Foundation “You’re not alone”
Introducing Your Baby
Coping With Other People’s Reactions
Practical guides for rare disease (CMTC-OVM)
Guide for siblings
Psychological impact of living with a rare disease
Conversation health care provider