Tag: ERNskin

representing CMN at Eurordis ERN skin meeting

0 commentsEurordisPatient AdvocacyERNskin

ERN-skin virtual board meeting The following was discussed: A patient survey in (7 languages) for the ERNs (hospital) is finalized CPMS (clinical patient management system), where doctors and patients can consult each other online is not yet working. A helpdesk was launched. A registry project is launched to connect and share sufficient data for Rare ….  Read More