Marjolein van Kessel
The mother of three children, the middle one was born with Congenital Melanocytic Naevus (CMN). My middle child (son) was born with Congenital Melanocytic Naevus, and also had neurological complications. When he was 13 years old he became ill and died of complications (Neurocutaneous Melanocytosis). CMN has an impact on the person with the condition, his siblings, parents, family, and friends. It’s my dedication to improving social care and healthcare as a patient advocate. I live in the Netherlands.
Other roles:
- Team leader patient group Naevus International
- ePAG ERN-skin (European Patient Advocay Group, European Reference Network – skin)
- Treasurer Nevus Netwerk Nederland, the Dutch organization for congenital melanocytic naevus