Connecting people with Congenital Melanocytic Naevi worldwide

Naevus Global is an international team of deputies from national patient advocacy groups and individual patient advocates dedicated to improving the lives of people affected by congenital melanocytic nevi (CMN) and possibly neurocutaneous melanocytosis (NCM) through the promotion of both biomedical research and improved access to information.
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Information

CMN (Congenital Melanocytic Nevus) can turn your life upside down. The diagnosis and treatment of giant birthmarks require physical, emotional, and mental endurance. As part of Naevus Global, we understand this better than anyone else.

Read our information

SUPPORT

Naevus Global strives for a better quality of life and improved quality of care for individuals dealing with giant birthmarks. Connecting to other people will help you find the best care. We try to connect you with support groups as close to you as possible.

Find other people

ACTIVITIES

Naevus Global connects to international organizations. Representing Congenital Melanocytic Naevi at international conferences will raise awareness and stimulate healthcare providers, researchers, and policymakers to improve healthcare.

Learn about our activities

Personal stories

Living with

It was not my choice or desire to be born with CMN. But I have a choice of how to react to it and how to live my life

Julianna Yussef

Living with CMN

Treatment

“I had 12 surgeries, we don’t know how many I’m going to have. We think I might have six more.”

Chloe, treatment with tissue expanders.

More about treatment

Complications

“He does not stop sharing his smiles and positivity with the world.”

Erez has neurological complications.

More about complications

Your support is powerful

To optimize medical care and avoid stigmatization for individuals with CMN and their environment.

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REGISTER AS A MEMBER

Register your CMN patient organization and learn about international activities. Or become a patient advocate for your country when there is no CMN organization.

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CONTRIBUTE WITH A DONATION

Do you want to make a concrete contribution to improving the quality of life for people with Congenital Melanocytic Naevus? Making a donation to our organization increases the (global) visibility.

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Subscribe to our newsletter

Register for our newsletter and learn about the latest news and activities of Naevus Global. It can inspire you to become involved as a patient advocate or representative.

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Nevus Netwerk Nederland Follow

Have you ever heard of (giant) congenital melanocytic nevi? It's a rare skin condition. We are happy to share our experiences.

NevusN
Retweet on Twitter Nevus Netwerk Nederland Retweeted
rarediseaseday Rare Disease Day @rarediseaseday ·
4 Dec

It isn’t just monuments that can #LightUpForRare; you can do it from the comfort of your own home too!💜

👉 https://www.rarediseaseday.org/downloads/lightupforrare/

Light up your home in the #RareDiseaseDay colours and raise awareness for our movement and community!🌟

#ShareYourColours #RaisingAwareness

Reply on Twitter 1731727000434348421 Retweet on Twitter 1731727000434348421 7 Like on Twitter 1731727000434348421 16 Twitter 1731727000434348421
Retweet on Twitter Nevus Netwerk Nederland Retweeted
cjcmarch cindi colby @cjcmarch ·
1 Dec

Happy Birthday in Heaven
💖 Remembering Holly 💖
December 1 , 2011 - February 21 , 2014 @cmnsupportgroup
@KinslerLab
https://www.caringmattersnow.co.uk/hollys-story/

Reply on Twitter 1730560008847343690 Retweet on Twitter 1730560008847343690 1 Like on Twitter 1730560008847343690 1 Twitter 1730560008847343690
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