Connecting people with Congenital Melanocytic Naevi worldwide

Naevus Global is an international team of deputies from national patient advocacy groups and individual patient advocates dedicated to improving the lives of people affected by congenital melanocytic nevi (CMN) and possibly neurocutaneous melanocytosis (NCM) through the promotion of both biomedical research and improved access to information.
Subscribe to newsletter

Latest news

1 2 3
page 1 of 3

Activities

October 2023
November 2023
No event found!

Our themes

Information

CMN (Congenital Melanocytic Nevus) can turn your life upside down. The diagnosis and treatment of giant birthmarks require physical, emotional, and mental endurance. As part of Naevus Global, we understand this better than anyone else.

Read our information

SUPPORT

Naevus Global strives for a better quality of life and improved quality of care for individuals dealing with giant birthmarks. Connecting to other people will help you find the best care. We try to connect you with support groups as close to you as possible.

Find other people

ACTIVITIES

Naevus Global connects to international organizations. Representing Congenital Melanocytic Naevi at international conferences will raise awareness and stimulate healthcare providers, researchers, and policymakers to improve healthcare.

Learn about our activities

Personal stories

Living with

It was not my choice or desire to be born with CMN. But I have a choice of how to react to it and how to live my life

Julianna Yussef

Living with CMN

Treatment

“I had 12 surgeries, we don’t know how many I’m going to have. We think I might have six more.”

Chloe, treatment with tissue expanders.

More about treatment

Complications

“He does not stop sharing his smiles and positivity with the world.”

Erez has neurological complications.

More about complications

Your support is powerful

To optimize medical care and avoid stigmatization for individuals with CMN and their environment.

registreer-als-lid

REGISTER AS A MEMBER

Register your CMN patient organization and learn about international activities. Or become a patient advocate for your country when there is no CMN organization.

Register
sponsor

CONTRIBUTE WITH A DONATION

Do you want to make a concrete contribution to improving the quality of life for people with Congenital Melanocytic Naevus? Making a donation to our organization increases the (global) visibility.

Donate
vrijwilleger

Subscribe to our newsletter

Register for our newsletter and learn about the latest news and activities of Naevus Global. It can inspire you to become involved as a patient advocate or representative.

Sign me up

X (formerly twitter)

Nevus Netwerk Nederland Follow

Have you ever heard of (giant) congenital melanocytic nevi? It's a rare skin condition. We are happy to share our experiences.

NevusN
nevusn Nevus Netwerk Nederland @nevusn ·
26 Sep

🎉🌟 10 Years of Making a Difference! 🌟🎉

It's a momentous day for us at Naevus Global as we celebrate a decade of dedication, passion, and relentless efforts. From 2013 to 2023, we've come a long way, and today marks our 10th anniversary! 🥳
(1/8)

Reply on Twitter 1706658535763779696 Retweet on Twitter 1706658535763779696 2 Like on Twitter 1706658535763779696 5 Twitter 1706658535763779696
Load More

Start typing and press Enter to search