This video gallery shows videos of people with CMN. If you have a video that teaches other people about your journey with CMN you wish to share, please contact Naevus Global.
Chloe
In a world where you can be anything – be kind
Born with a congenital nevus on her leg Chloe explains how a tissue expander will remove the nevus.
El nevus gigante congénito
Beatriz Pugliese (Brasil)
Lucas (U.S.A.)
Loving my dots, Nathalia Moraes Freitas
More videos on her youtube channel
Facebook Loving my Dots
Instagram Loving my Dots
Exhibition “How do you C me now?” (Caring Matters Now, UK)
German
Cassandra Naud (Canada)
Professional dancer Cassandra Naud was born with a large birthmark under her left eye. She says that she appreciates her unique facial feature and that it helps her stand out in her field.
More videos on her youtube channel
Mariana Mendez
Instagram: @marianamendes.m
twitter: @marianamendes_m
More videos on her youtube channel
Marika
Instagram: marynevus
Erez
Erez is born with CMN and neurological complications.
website: Yoocan
Facebook: Yoocan do anything
Twitter: Yoocan
Instagram: Yoocandoanything
Nevus: Teo’s Story
Monika Naturski talks about her journey from Poland to America to find the specialized care her son, Teo, needed.
Beatrice de Reviers
We are all confronted daily with the gaze (s) of others. For some, the weight of this look may be more difficult to carry than for others. Through the experience of her own life, her career as a doctor, and the assistance of several people like her with a giant nevus, Béatrice de Reviers introduces us to different techniques or strategies to better cope or simply manage the gaze others. Béatrice DE REVIERS, is a general practitioner. Its vocation is to take care of others and to transmit. In search of tools facilitating the acceptance of the gaze on the congenital giant nevus, she conversed one day on the networks with doctor Heather ETCHEVERS. At the same time, in her daughter’s school, she meets a child with this “giant nevus” for the first time in her life. Chance or coincidence, his mother is none other than Doctor ETCHEVERS. This meeting will give birth to the ANNA association, a multidisciplinary commitment to the development of psychological help for children with dysmorphia. The project is the creation of therapeutic workshops and the labeling of strategies in the support protocol. ANNA will take human form in a therapeutic and educational comic strip, already the “Dermatologist of the Heart” prize, to be published in late 2016. (Video with English subtitles)
Nous sommes tous confrontés quotidiennement au(x) regard(s) des autres. Pour certains, le poids de ce regard peut être plus difficile à porter que pour d’autres. Au travers de l’expérience de sa propre vie, de sa carrière de médecin, et du concours de plusieurs personnes atteintes comme elle de Naevus géant, Béatrice de Reviers nous fait découvrir différentes techniques ou stratégies pour mieux faire face ou tout simplement gérer le regard des autres. Béatrice DE REVIERS, est médecin généraliste. Sa vocation est de prendre soin des autres et de transmettre. En recherche d’outils facilitant l’acceptation du regard sur le naevus géant congénital, elle converse un jour sur les réseaux avec le docteur Heather ETCHEVERS. Parallèlement, dans l’école de sa fille, elle rencontre pour la première fois de sa vie une enfant atteinte de ce «grain de beauté géant». Hasard ou coïncidence, sa maman n’est autre que le Docteur ETCHEVERS. Cette rencontre fera éclore l’association ANNA, un engagement pluridisciplinaire pour le développement de l’aide psychologique aux enfants atteints de dysmorphie. Le projet est la création d’ateliers thérapeutiques et la labélisation des stratégies dans le protocole d’accompagnement. ANNA prendra forme humaine dans une BD thérapeutique et pédagogique, déjà prix du «Dermatologue du cœur», à paraître fin 2016.