Privacy and security are very important in the field of non-profit patient organizations. Privacy/security issues can cause a lot of harm to for instance patients, families and the organization. The new European General Data Protection Regulation (GDPR) has put a tremendous focus on privacy and security.
Naevus Global only keeps e-mail addresses, with first name and last name of people who register with us as a newsletter subscriber. They have the right to be forgotten (‘forgetfulness’).