Privacy

Privacy and security are very important in the field of non-profit patient organizations. Privacy/security issues can cause a lot of harm to for instance patients, families and the organization. The new European General Data Protection Regulation (GDPR) has put a tremendous focus on privacy and security.

We embed a Facebook widget to allow you to see the number of likes/shares/recommendations and “like/share/recommend” our webpages. This widget may collect your IP address, your web browser User Agent, store and retrieve cookies on your browser, embed additional tracking, and monitor your interaction with the widget, including correlating your Facebook account with whatever action you take within the widget (such as “liking/sharing/recommending” our webpage) if you are logged in to Facebook. For more information about how this data may be used, please see Facebook’s data privacy policy: https://www.facebook.com/about/privacy/update.

We use a Twitter Tweet widget on our website. As a result, our website makes requests to Twitter’s servers for you to be able to tweet our webpages using your Twitter account. These requests make your IP address visible to Twitter, who may use it in accordance with their data privacy policy: https://twitter.com/en/privacy#update.

We use a Linkedin Share widget at our website to allow you to share our webpages on Linkedin. These requests may track your IP address in accordance with their data privacy policy: https://www.linkedin.com/legal/privacy-policy

Naevus Global only keeps e-mail addresses, with first name and last name of people who register with us as a newsletter subscriber. They have the right to be forgotten (‘forgetfulness’).