Privacy

Privacy and security are very important in the field of non-profit patient organizations. Privacy/security issues can cause a lot of harm to for instance patients, families, and the organization. The new European General Data Protection Regulation (GDPR) has put a tremendous focus on privacy and security.

We embed a Facebook widget to allow you to see the number of likes/shares/recommendations and “like/share/recommend” our web pages. This widget may collect your IP address, your web browser User Agent, store and retrieve cookies on your browser, embed additional tracking, and monitor your interaction with the widget, including correlating your Facebook account with whatever action you take within the widget (such as “liking/sharing/recommending” our webpage) if you are logged in to Facebook. For more information about how this data may be used, please see Facebook’s data privacy policy: https://www.facebook.com/about/privacy/update.

We use an X (Twitter Tweet) widget on our website. As a result, our website makes requests to Twitter’s servers for you to be able to tweet our web pages using your Twitter account. These requests make your IP address visible to Twitter, who may use it in accordance with their data privacy policy: https://twitter.com/en/privacy#update.

We use a Linkedin Share widget on our website to allow you to share our web pages on Linkedin. These requests may track your IP address in accordance with their data privacy policy: https://www.linkedin.com/legal/privacy-policy

Naevus Global only keeps e-mail addresses, with the first names and last names of people who register with us as newsletter subscribers. They have the right to be forgotten (‘forgetfulness’).